Let me first say, it was amazing that I actually got in to see this doctor who isn't accepting new patients and who specializes in kids with delays and special needs. We initially saw the nurse who spent the first hour with us going over all of Sarah's birth history, growth information, developmental milestones, measurements and even blood pressure. After an additional 10 minute wait, Dr. M came in to see us. When all was said and done, it was determined that:
- Sarah will get another MRI of her head to see what is going on in it. She has a very small head due to failure of brain growth (Microcephaly). This can (and is very likely) causing the delays in her balance, speech and other areas of development such as fine and gross motor skills.
- We have been asked to get genetic testing done. We were offered this when she was younger and we didn't get it done... we likely will look into it now.
- We've been referred to the Glenrose for more intense and therefore conclusive testing and assessments.
- She needs to see a pediatric opthamologist for her eyes.
- I need to work on stretching her hips. They are really tight and are part of the balance issues she has.
- We'll go back for a three month follow up.
During the initial exams, she cried. She didn't like having her blood pressure taken or her ears checked. She was equally upset when the Doctor started manipulating her hips. She kept crying with these huge tears rolling down her cheeks, "I wan' go hoooooome". Poor little girl.
I am so thankful that Doug and Melanie (my sister in law) were able to join me at the appointment. I am was emotionally charged to begin with and it was a blessing to have two extra people to support me as well as hear things that I may have missed.
Earlier I mentioned that Dr. M isn't accepting new patients. It just so happens that my beautiful sister in law is a nurse for him and she asked if he would accept and look at Sarah. He agreed to see her and as hard as today's visit was, I'm very thankful.